WASHINGTON DC – US Senators Shelley Moore Capito (RW.Va.) and Chris Murphy (D-Conn.), introduced the National plan to end the Parkinson’s disease law, which aims to unite the federal government in a mission to cure and prevent Parkinson’s disease, ease the financial and health burdens of American families, and reduce public spending over time. Parkinson’s disease is the second most common – and fastest growing – neurological disease in the world, with at least 60,000 new cases diagnosed each year. Representatives Tonko (DN.Y.) and Bilirakis (R-Fla.) introduced complementary legislation, HR 8585, in July 2022.
“Far too many people in West Virginia are affected by Parkinson’s disease,” Senator Capito said. “Whether living with the disease or caring for someone affected by it, Parkinson’s disease has a terrible impact on the physical, mental, emotional and economic well-being of everyone involved. . The National plan to end the Parkinson’s disease law is common sense legislation that will establish a solid response to fight the disease and point us towards new treatments and a cure.
“Anyone living with Parkinson’s disease or caring for a loved one affected by the disease knows how devastating this diagnosis can be. The National Plan to End the Parkinson’s Disease Act would create a comprehensive strategy to get us closer to a cure while ensuring that we do everything we can to help patients and their families access better, more affordable care,” Senator Murphy said.
“With more Parkinson’s disease therapies available today and more in clinical trials, we are hopeful about the future of Parkinson’s disease research and care. Yet, to achieve our mission, we know it will take the collaborative effort of individuals from all sectors to move the dial and find a cure,” Deborah W. Brooks, CEO and co-founder of the Michael J. Fox Foundation for Parkinson’s Research, said. “The Parkinson’s disease community across the United States is grateful for the leadership of Senator Capito and Senator Murphy in leading the Senate effort on The national plan to end Parkinson’s disease — an important bill that will allow collaboration between the public and private sectors to prioritize advances in research towards better treatments and access to quality care that all person affected by this disease has an urgent need.
“Senator Capito is an incredible leader and a champion of better cures and treatments for neurological diseases,” George Manahan, a Charleston business owner and a person living with Parkinson’s disease, said. “His leadership on the National plan to end the Parkinson’s disease law gives people with Parkinson’s disease new hope for a cure. When I was diagnosed, I began working with state and federal lawmakers to prioritize the need for treatment and public-private collaboration to make it happen. Senator Capito is a hero to those of us living with Parkinson’s disease, and I am grateful for her work in creating this important piece of legislation.
“Parkinson’s disease is impacting patients and their families in America more than ever. It causes progressive disability of movement, cognition, and other functions with no remedy on the horizon. We need to coordinate and accelerate our research and management efforts to better understand this disease, in the hope that one day soon we will see the end of this disease,” Dr. Ali Rezai, executive chairman of the WVU Rockefeller Neuroscience Institute (RNI), said.
The National plan to end the Parkinson’s disease law create an advisory council made up of members from each federal agency that supports research, care and services for Parkinson’s disease, as well as caregivers, patients and other non-federal experts.
The advice will:
- Ensure coordination between all federal entities responsible for the management, treatment and cure of Parkinson’s disease;
- Evaluate all current federal programs related to Parkinson’s disease;
- Write a national plan to prevent and cure Parkinson’s disease and reduce the financial impact of the disease on patients and the federal government; and
- Report annually to Congress on progress towards the goals of the plan.
For invoice text, click here.
For a page on legislation, click on here.